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The All-Party Parliamentary Group (APPG) on Endometriosis was launched in 2018 to raise awareness of endometriosis in Parliament, investigate how those who suffer from the condition can receive the support they need, and inquire into whether women are given an informed choice about the treatment options available for endometriosis and fibroids.

An Inquiry by the APPG on Endometriosis has highlighted the devastating impact endometriosis can have on all aspects of a person’s life, and urges Ministers to take bold action to ensure those with endometriosis have access to the right care at the right time. © All-Party Parliamentary Group (APPG) on Endometriosis

A recently published inquiry by the All-Party Parliamentary Group on Endometriosis has highlighted the impact endometriosis can have on all aspects of a person’s life, and urges Ministers to take bold action to ensure those with endometriosis have access to the right care at the right time.

The inquiry surveyed over 10,783 people with endometriosis, interviewed healthcare practitioners and those with the condition about their experiences, and found that:

  • Average diagnosis times for endometriosis have not improved in over a decade – it still takes 8 years on average to get a diagnosis;
  • Prior to getting a diagnosis and with symptoms:
    • 58% visited their GP more than 10 times
    • 43% visited doctors in hospital over 5 times
    • 53% visited A&E;
  • Once diagnosed, only 19% know if they are seen in an endometriosis specialist centre;
  • 90% would have liked access to psychological support, but were not offered this.

The full report can be downloaded here: Endometriosis in the UK: time for change an APPG on Endometriosis Inquiry Report 2020 (PDF).

We at Endometriosis CaRe Oxford support the findings of the APPG inquiry and the recommendations to drive down diagnosis times, improve care and awareness, and invest in research. We are grateful to all our patients for their commitment to take part in our studies and improve our understanding of endometriosis.

For more information on endometriosis, visit our For Patients pages, and for more information on our current endometriosis, fibroids and pelvic-pain research projects, such as FENOX and TRiPP, please visit our Research Studies page.

 

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