Useful Links
There are a number of patient organisations and useful websites that are available to offer information, guidance and support on endometriosis and issues related to pain in women, fertility and gynaecology in general.
Endometriosis
- Endometriosis UK
- World Endometriosis Research Foundation
- World Endometriosis Society
- The Endometriosis and Fertility Clinic
- Royal College of Obstetricians and Gynaecologists: Endometriosis Information Leaflet
- National Institute for Health and Care Excellence: Endometriosis Diagnosis and Management Guidance
Pain
- International Pelvic Pain Society
- Pelvic Pain Support Network
- Vulval Pain Society
- Mothers with Anal Sphincter Injuries in Childbirth
Fertility
- Fertility Network UK
- Human Fertilisation and Embryology Authority
- The Endometriosis and Fertility Clinic
- European Society of Human Reproduction and Embryology - Guideline on the management of women with endometriosis
Gynaecology
Other
SUPPORT GROUPS
Support groups can offer valuable information, guidance and friendship for anyone affected by endometriosis. Local support groups can give those whose lives are affected by endometriosis the chance to meet and talk with others who share and understand their situation. Women can get help through challenging times, improving the quality of their lives and empowering each other to make informed choices about their health. They may also gain techniques to help them manage the condition through pain management and coping techniques.
Endometriosis UK offers a number of support groups through the UK and online. Support groups offer valuable support and information. Find out more about support groups and see upcoming support group meetings by clicking here.
In addition to support groups, Endometriosis UK runs a helpline to provide support and advice: 0808 808 2227. Find out more about the helpline and the opening hours by clicking here. Because it may be difficult to talk to someone in person or over the phone, an online community is available with thousands of members sharing their experience of endometriosis on forums. Find out more about the online community by clicking here.
If you're in distress and need someone to talk to, you can call the Samaritans' 24 hour emotional support line in full confidence: 116 123.